80 miles from Bimini to Lake Worth for @crossingforacure was the most incredible experience. I had a range of emotions from being full of adrenaline, to feeling strong, to hitting a wall, and crying when you step on the beach at the finish line. This paddle is one of a kind that brings people together and makes great memories. I have huge respect for those living with Cystic Fibrosis. You guys are so special and so strong. This is for you and you deserve it all. Thank you so much for the support @bluelinesurf_paddleco@flying_fish_board_co@4ocean and everyone who helped with this event!
•It’s been a big CF day for me.
This morning I went to the chiropractor for my weekly massage and adjustment (you can read more about this in one of my previous posts). While I was getting ready for the massage I heard my massage therapist coughing like crazy in the other room. I got up, got ready to go and told her, “I’m sorry, but I get hospitalized so easily that I can’t risk catching anything.” Luckily she was wonderful and understanding. This is something that I don’t think I ever would have done in the past. As small as it sounds, this was a big achievement for me. I realized that people can’t help what they don’t know, but they can be so understanding about CF when you communicate. Don’t let what others think, stop you from taking care of yourself!
After this morning, I had the opportunity to meet with some amazing women at @cff_sc. It’s good to know that such wonderful people are working towards bettering the lives of the CF community.
We are so happy to partner with Colton Underwood's Legacy Foundation to provide 50 AffloVests in 50 states to Cystic Fibrosis patients. Be sure to follow along to hear about amazing CF warriors like the North Carolina recipient, Jennifer! For more information or to nominate someone, please go to @coltonslegacy#ColtonsLegacy#AffloVest#CFWarrior#CysticFibrosis
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Some days cystic fibrosis likes to throw in a big huge reminder that it's not just a lung disease. The havoc it can play on the digestive system is brutal! Our usually very wild and cheeky Austin has been like this for a couple days. Very lethargic and not keeping anything down and what makes it harder is that he can't communicate what he's feeling 😩 #cflife#cf#cysticfibrosis#cftwins#weneedacure#curecf