#Repost@pinksurfwax with @get_repost
I wanted to share a few photos from my pregnancies. I had severe HG that I required a NJ-tube, G-tube, PICC line and zofran pump among so much more. I’m excited to say that HER/UCLA/USC HG study has resulted in the first possible link to HG to two genes. I was able to be a part of UCLAs study with my pregnancy with Margot. Although we are nowhere near a cure it is one step closer. If you wish to read more or donate please visit HelpHer.org. #hgstrong#hyperemesisgravidarum#helpher
Party with a purpose! Monday, January 21 is the national Dr. Martin Luther King, Jr. Day of Service and this year, we @mybpnetwork will partner with @beautyinitiativeinc and @ywcamiami Black to host a hygiene packing party! We are accepting donation items such as sanitary napkins, femine wipes, tampons, soaps, etc. Monetary donations give be provided here http://ow.ly/IcsY30nhyng
The Beauty Initiative is a non-profit organization that caters to women and girls in need. Their inaugural initiative, "Help Her. Period." provides FREE menstrual necessities to women that are experiencing homelessness or financial hardship as well as girls in schools that do not provide feminine hygiene supplies. Join us here: http://ow.ly/IcsY30nhyng
"Do you ever feel like throwing in the towel because what goes on within in your life/mind/body feels too hard to contend with? Well....ME TOO!
My favorite quote is this gem from Ralph Waldo Emerson. “That which we persist in doing becomes easier, not that the nature of the task has changed, but our ability to do has increased.'" Tune in for today's complete Words of Wellness Post in our VIP Facebook group at Free Two Be Fit.
Hyperemesis gravidarium. Some of you may have heard of it from either Princess Kate or Amy Schumer having suffered from this. Others may have no idea, and may think this is “just morning sickness”. It’s more accurate to say that your body is allergic to pregnancy. This is beyond morning sickness, and cannot be cured by crackers and ginger. I am actually sicker now at 27 weeks than I was the first trimester. I now am on my second picc line as I got a blood clot in my arm from my first one, so I am on lovenox injections for the rest of my pregnancy. I am on continuous iv fluids to help with my dehydration and to give me a little bit of extra nutrients. I also have a zofran pump giving me medication continuously, as well as Pepcid and phenergan by mouth to try to help. I am incredibly lucky to have a supportive mother and husband that have helped not only help around the house but to keep me sane. This baby was very much wanted and planned for, and despite all of the complications I am so grateful to carry this baby. But we will not be having any more after her. I am not going to change my mind, it would be selfish of me to be this sick while trying to care for a baby, or to ask my mom and husband to have to take care of me again. I am grateful to feel life growing inside of me, but once is enough. To learn more look up the HER foundation. Today is national HG awareness day. #helpher#hg#hyperemesisgravidarum
20616 May, 2019
Today is International HG Awareness Day. 🤰🏻 .
HG is Hyperemesis Gravidarum. 🤢
It is NOT morning sickness. 👎🏼 .
It will NOT “go away” with saltines and ginger ale. 👎🏼 .
It is NOT just “all in her head” or made up. 👎🏼 .
It is REAL, and it is DEVASTATING. 😞
I had HG with pregnancies #3 ️⃣ and #4 ️⃣. .
This was at the worst point, in pregnancy #3 . I had lost a lot of weight, couldn’t even keep water down, and was passing out. 😞
Today, do me a favor. Take 5 minutes to check out this link (link also in comments for easy copying and pasting!): http://www.hyperemesis.org/hyperemesis-gravidarum/
And if you know someone struggling alone with HG, please let me know. I volunteer with the HER Foundation, and can direct you to some great support. 💜
May 15 is hyperemesis gravidarum awareness day.
Less than 2% of expectant mothers will experience the debilitating effects of hg and while some of that 2% will experience some relief around the 20 week mark even fewer will be forced to endure the symptoms throughout their entire pregnancy. I was one of those few. Vomiting 15 times a day, placed on a litany of medications, in and out of the hospital several times for IV medication, prenatal weight loss, severe food aversion, loss of appetite, depression and isolation.
I was once told by a male ER physician that "vomiting is a common side effect of pregnancy".....HG is not normal, its effects on your body will take you to your physical and emotional limits, but you WILL survive it and be a stronger mom because of it.
Be vocal about your experience to help not only you and your precious little one but to help educate friends, family and the medical community for the sake of other moms and littles out there. #hgawareness#hgad2019#hgaware2019#hgsisterhood#hyperemisisgravidarum#2percenter#helpher#pregnancyjournal#vomitjournal#hgisnotmorningsickness#theseabandsdidnthelp#yesitriedthat@hyperemesissisterhood@hgmoms
13215 May, 2019
Today is Hyperemesis Gravidarum (HG) Awareness Day. HG is a serious and rare condition that affects around 2% of pregnant women. It is often misunderstood and dismissed as morning sickness but HG is potentially life threatening. It is the leading cause for hospitalization in early pregnancy and 2nd overall. Fetal loss rates for an HG pregnancy are 1 in 3. There is an increased risk of prematurity, restricted fetal growth, and preeclampsia. The failure to recognize or the dismissal of HG can limit or delay treatment resulting in trauma, anxiety and depression, termination, and job loss. I am part of the 2%. This is my tougHGirl who made the 30lb weight loss, vomiting 20+ times a day, and depression worth it. #hgad2019#hyperemesisgravidarum#inhergenes#notherhead#pregnancy#baby#hgsucks#helpHER#tougHGirl
10015 May, 2019
It's HG awareness day! I nearly starved to death for my little peanut but it was worth all the puking. The second photo is the McKinley pump I had giving me constant zofran because it wouldn't stay down orally. The red spots are all hard and swollen as subcutaneous zofran irritates tissue. Rescue doses burn as they go in but anything to stop the vomiting. I had to change it every 48 hours myself with a catheter and needle. Even the lightest touch felt like someone was jamming hot coals into my stomach. I also did 2 liters of IV fluids everyday at home on my own. I had home care nurses over every few days to check on me and make sure my IV was okay and I wasn't losing more weight. Luckily I didn't need a PICC line or TPN so I was very lucky. It may be genetic as new studies found. I hope more than anything my daughter never suffers from this bit if she does I hope there's better help I hope she has answers. #hgawareness#hypermesisgravidarum#helpHER#worthstarvingfor
HG is two pink lines and a burst of joy before the nausea hits
HG is 2 ER trips before 6 weeks
HG is all day debilitating nausea from the second I wake up to the second I fall asleep
HG is vomiting, so much vomiting.
HG is more ER visits and doctors telling me “nausea is normal”
HG is vomiting blood and bile because I have nothing left to throw up
HG is thirst and starvation, weakness and dizziness
HG is electrolyte imbalances, heart palpitations, sitting with your head between your knees so you don’t pass out
HG is crawling to bathroom to throw up because you’re too dizzy to walk
HG is pills, medications and giving steroids a try
HG is reactions to those pills, hallucinations and paranoia, sleep paralysis and night terrors
HG is crying in doctors appointments because they just don’t understand
HG is hospital stays and IV infusions
HG is vomiting all over yourself and your bed because you didn’t feel it coming
HG is not being able to play with your daughter
HG is too many needles to count
HG is bruised arms, broken blood vessels, and a tear in my esophagus
HG is “have you tried crackers or ginger?”, “just stay positive”, and “my wife had it worse”
Hyperemesis Gravidarum is my life right now, it is so hard and so exhausting but it will be so worth it in the end.
Today is International Hyperemesis Awareness Day, so many people don’t know or don’t understand what this illness is. It is not morning sickness, it is so much worse. It can cause depression, anxiety, and PTSD. If it is severe it can cause miscarriage, in rare cases it is even fatal. It can cause organ failure, thyroid disorders, electrolyte imbalances, and more. The baby is at higher risk for IUGR, placenta abruption, and premature birth.
Hyperemesis is debilitating and devastating but the burden can be lightened by support from family and friends. To learn more about Hyperemesis and how you can support someone who has it visit helpher.org (I will have the link in my bio for the next few days) #HGAD2019#HGaware2019 #hyperemesisawarenessday#HG#HGpregnancy#helpher#hyperemesisgravidarum
1372115 May, 2019
May 15th is #NationalHyperemesisAwarenessDay .
I have had HG 3 times. By God's answer to prayer, I am had my first #HG free pregnancy with squishy. I found this post from two years ago on Mother's Day that I wrote. If you are suffering or know someone who is, please get them in touch with me. #youarenotalone I have helped several in the last three years. "On this rainy Mother’s Day morning, I lay here snuggled up in my warm bed scrolling through old photos on my computer, reminiscing about my sweet babies that I can hear laughing and running outside my bedroom door.
I come across this photo. I remember it so very well. We had just found out I was pregnant with Claire. It was 11/26/11. We were staying in my parent’s basement and I naively snapped this photo with the caption, “my new best friend”. I remember thinking that this was so fun, I couldn’t believe I was pregnant and I embraced those first few days of morning sickness…. But, then it didn’t stop. I was so naïve, the look on my face in this photo makes me cringe. I had no idea.
Three pregnancies later, numerous ER visits, countless bags of fluids, and about a million times of throwing up…. I am not naïve anymore.
Pregnancy to me is the hardest, most emotionally challenging event in my life. I am plagued with massive amounts of vomiting and unrelentless nausea. I suffer. My family suffers. I wish the pregnancy away, and then I feel so guilty. It is hell. I cling to Christ and then I beg him “why”. How can this bring Him honor and glory. Here we are trusting God with my family size, and we have to suffer to do so. Pregnancy brings me to a dark place, and it isn’t fun to admit that.
However, I believe that with each pregnancy God is molding me into the woman He desires me to be. I am much more appreciative of the suffering Christ went through for me, and my suffering doesn’t even compare.
Though I have no idea if I will ever be pregnant again, we are always open to God’s will. I do have hope, however. Each pregnancy has gotten a bit better as my research becomes more thorough and the more I prepare my body and my family. I prepare by getting labs drawn and making sure my vitamin and mineral levels are with
16215 May, 2019
HG awareness day! So many emotions are brought up every time I see pictures from my pregnancies with John, Ellie & especially Grace. There aren’t words to describe just how hellish each pregnancy was with them. I’m grateful beyond words that I had just regular morning sickness for 17 weeks with Caroline. My pregnancy with her had a lot of other scary complications, but out of all my pregnancies, I’d rather do hers over than relive a minute of the others. Just after finding out I was pregnant with Caroline (our little surprise girl) I fell to my knees and sobbed, begging to not have to endure HG for a 4th time. Idk why that particular prayer was answered bc research shows that each pregnancy is worse than the last (I lost 25lbs with John, 40 with Ellie, and 40 with Grace). For anyone who is struggling or knows someone who is struggling helpher.org is a great resource to check out. It’s NOT something that you can just will away, or throw some ginger and crackers at (pleeeease don’t tell someone suffering to just eat or drink those things 😬), you can’t just put on your big girl pants and push through nausea and vomiting of that caliber (I averaged 30ish puking sessions/day). It’s debilitating and scary, and in some cases fatal to mom and baby. It is NOT just morning sickness. My older 3 are here thanks to modern medicine. They were all born healthy; Grace suffered symmetrical IUGR though because of how sick I was (the belly shot shows how small. I was just a couple weeks from delivery and she only measured at 32 weeks). It could have been worse though, for her and I. Had I been born in a different century they would’ve died, and I probably would have too. || #hyperemesisgravidarum#hgawareness#helpher#3timehgsurvivor#tougHGuy#tougHGirls#itsnotmorningsickness#piccline#neverendingivs#chemogradeantinauseadrugs#zofran#phenergan#compazine#reglan#iugr#iugrbecauseofhg
11015 May, 2019
HG - Hyperemesis Gravidarum.
HG ruined my body and mind. It’s a wicked sickness that steals all joy that you should feel about the life you have growing inside of you. It’s the reason I’m still healing and going from doctor to doctor a year and a half after it ended. It’s much more than “morning sickness”. It’s watching your water bill go from $50 max to $150 because of how much you flush the toilet from vomiting. It’s an eroded and scarred esophagus from all the dry heaving you did. It’s teeth being more brittle and unhealthy than ever before from all of the acid that swarmed in your mouth 30 or more times daily. It’s feeding tubes and picc lines. It’s sending you into a panic every time you have the slightest wave of nausea because you think it’s starting all over again and you flashback to everything you went through. It’s working through intimacy problems because you’re so terrified of going through that again - only worse this time. Because you have a precious child counting on you to be around to raise him and nurture him.
I haven’t been too vocal about HG since it ended. Honestly because it’s the darkest place I’ve ever been in my life. The days and nights that I screamed and cried for it to be over laying in bed with vomit dried in my hair is a time of my life I like to act like never happened. Or joke it off when it comes up in conversation because that’s easier than reliving those days and fears. Countless doctors, at home health care visits, blown and busted veins, medications, pumps, hospital stays consumed the whole making of Henry Rhett. My potassium dropped so low many times that they didn’t know how my heart was still beating. One of those was the day I was admitted to be induced. But we had no choice but to get the baby out. They told me there was a 90% chance Henry Rhett would go straight to the NICU upon delivery. There was a 50/50 chance I would go into shock during labor.
HG is very real. It’s aggressive and does take lives. Mother’s and babies lives. We survived. #HGawarenessday#helpHER#hyperemesisgravidarum
34515 May, 2019
Today is HG awareness day and while I wish I was in a place to have a whole bunch of awesome and empowering things to say, it’s back with a vengeance, I’m struggling physically and emotionally, and I cannot wait to say goodbye to HG forever. .
I’m broken, knowing that this horrible disorder has complete control over our plans and has taken away the option of having any more babies. I know in my heart that our family isn’t complete, and that’s a hard pill to swallow, so for now I’m just clinging to how lucky we are to have other options down the road. .
For the next month and a half I’ll just be here, hating this, probably miserable, and struggling with wanting it all over but never wanting this last pregnancy to end. #hyperemesisgravidarum#hgawarenessday#hgawareness#hg#helpher
9015 May, 2019
Today is Hyperemesis Gravidarum awareness day. This pictures are a tame example of HG and my why. *Hyperemesis Gravidarum (HG) is a debilitating and potentially life-threatening pregnancy disease marked by rapid weight loss, malnutrition, and dehydration due to unrelenting nausea and/or vomiting with potential adverse consequences for the mom-to-be and the newborn(s).*
I am grateful everyday for my two little girls and for being able to carry them.
I asked Dr. Google and Facebook mom groups if what I was experiencing was normal and they directed me to an HG page with women who were going through the same thing and helped with information so I could advocate for myself. The reality is that if I hadn't found support and stayed with OBs that were ignorant or wouldn't give medication to me, my girls and I might not be here today.
Even with support, medication, and iv fluids preterm birth was still the outcome but it was at a much later and manageable time. I was "medically fuffy" or able to function normally when full of medication and fluids at 25 weeks.
Some women aren't so lucky or aren't able to quit their jobs so to save themselves and their families they terminate. Hopefully sharing our stories will help other women get the care they need and get more research on this disease.
HG takes the happiness of pregnancy away but it couldn't take my babies or my will to have children and I am so very thankful. #hyperemesisgravidarum#helpher#ClarkeFelicity#LanaRose
Today is #hgawareness day and I want to share this with you all... Yes, this picture isn’t the prettiest. I was not dolled up or happy. I was miserable. So, why am I sharing this? Because it’s important for everyone to be aware of HG! Hyperemesis gravidarum is no joke. It causes severe nausea and vomiting and can even lead women to the hospital because of dehydration. It causes women to call out of work and the house to become a mess. And the anxiety that follows from the whole chaos HG causes is a monster. I have decided to share this not-so-attractive picture to raise awareness as well as tell other women you are not alone! I’m in my second trimester and I have to live on meds and in my seabands, because, without them, the trashcan is my best friend and I can literally hold nothing down. Some women don’t even get the luxury I do with medication! Women with HG are NOT failures. We are strong warriors growing beautiful human beings. If you know someone who is struggling, please reach out and give them your support. Give them some love! 💖💖 #hyperemesisgravidarum#helpher#pregnancy
8715 May, 2019
💜 H G A W A R E N E S S 💜
Today is Hyperemesis Gravidarum Awareness Day. HG is an incredibly debilitating pregnancy disease that affects ~2% of pregnancies. 1 in 3 HG pregnancies ends in loss. HG is far more than morning sickness. None of the typical "remedies" work, instead we need medication, IV fluids and nutrition therapy. It goes undiagnosed far too often, with many women told that it's all in their head or they just cant cope with a bit of morning sickness. Personally, I wasnt diagnosed until my third pregnancy. THIRD. That's two pregnancies where I was left to believe that I just couldn't cope like other women. Two pregnancies where I went without proper medical treatment and was instead made to feel bad for taking medication to try and stop the vomiting. My HG got worse with each pregnancy. With Henry's pregnancy, I lost 15kg in the space of two weeks. I was a bag of bones, so stick thin. My family were so worried for me, because I couldn't even take care if myself, let alone Clara or housework. My HG dies down around halfway through the pregnancy, but it doesn't leave until I'm in labour. Then I have to deal with the after effects. It took a few months before I had the strength to open a food packet easily. I'm only now able to open jars like I used to. It takes 1-2 months of recovery for each month you were sick, so i could still have another 8 months or recovery before I'm back to normal. If it wasnt for HG, I'd probably have a few more kids. I'd love to have a whole horde, but I just cant do pregnancy. Birth is easy for me, breastfeeding comes naturally even with its usual hiccups, but 9 months is a long time to be bedridden, and it sucks. It sucks to not be able to shower for longer than a few minutes every week or so because you even the like warm water makes you dizzy and faint. It sucks to have to chop half your hair off yourself because it's been weeks since you brushed it and it's just too matted to even try. It sucks to have to sit your toddler in front of the TV all day every day because you can't do more than throw a small ball across the room every now and then. Clara and I played fetch more times than I'd like to admit. It sucks. A lot.
Let's help Ruby! This beautiful girl lives in my state! She is paralyzed but her wonderful Foster's want to give her a chance with physical therapy! Help them raise $1400! DM me for link! Or https://www.facebook.com/donate/1153322508202935/?fundraiser_source=external_url
Three years ago today I was laying in bed in the dark silence praying that I would get relief. I’d tried zofran, sprite, Gatorade, water, ice. Small sips, swishing and spitting (that definitely just made me throw up, for the record), small swallows, all of it. I was waiting for my home health nurse to come the next day to set up my IV fluids and Zofran pump. I was waiting to feel human again. My chest was sore from throwing up so violently, my hips hurt from pregnancy and having to lay down. I wanted to sit up but I hadn’t eaten in two days and it made me dizzy, which made me nauseous, which made me throw up. I had at least 28 more weeks of pregnancy ahead of me and I didn’t know how I was going to make it through the day, let alone the week and then 27 more. I knew at this moment that the baby growing inside me was my last. It hurt in ways I’ve yet to discover. I want to remember my pregnancy with a smile and I still can’t. This is what I remember ... failed attempts at relief. Dehydration. Loneliness. Silence. Darkness. Tomorrow is Hyperemesis Gravidarum Awareness Day. Believe it or not, there are women who’s doctors tell them HG isn’t real. They say it’s in their head. Or they don’t want to be pregnant. Or they don’t want to eat. HG is real. Very real. I am lucky that it didn’t take many attempts to find a protocol that worked for me. Many women are not so fortunate. Many women choose to end their pregnancies to save their own lives because there’s so little scientific knowledge of it. HER Foundation (@hgmoms) works HARD to fund research, raise awareness, equip medical professionals with resources, and so much more. #HGAD2019#HelpHER#TeamHER#HGaware2019#HGmoms